My hiding spot
Beautiful Addison & mom's big nose!
Bat out of Hell with her walker!
Clapping with pride for putting her milk cup back in cup holder! Yay Addy!!!We went to bed Friday feeling good about Addison's condition and hoping/praying we would get to go home Saturday. Her blood work came back showing her platelets had dropped again to 3,000. The weekend Dr. feels Addison could have something other than ITP due to her lack of response to treatment. The Dr. has scheduled a bone marrow biopsy for Monday to run tests to check for Aplastic Anemia and Leukemia. Obviously this devastated all of us. We thought she was in the clear for anything really serious but now the doctors are not convinced. Charles and I are trying to stay strong for Addison. As Charles said..this is the kind of stuff that happens on TV or to other people. We never thought it would happen to our family and our perfect baby girl. We have not spoken to the Dr yet this morning but we don't expect much change.
On a good note, Addison is in great spirits. She is such a trooper. She enjoys running up and down the hallways, going on wagon rides, watching the planes/helicopter take off and land and playing in the playroom. We have let her watch movies (Blue's Clues is her favorite) and I think she might be addicted to TV now. We are still reading plenty though so we aren't too worried. She still gives every nurse/Dr that walks by a death look. She does not trust any of them since everyone in scrubs tends to poke and stick her. It really is quite funny. She is a pro at giving a scowl!
We will continue to keep everyone updated and again we thank everyone for the prayers, love and support you have shown us. Pray for a miracle!
On a good note, Addison is in great spirits. She is such a trooper. She enjoys running up and down the hallways, going on wagon rides, watching the planes/helicopter take off and land and playing in the playroom. We have let her watch movies (Blue's Clues is her favorite) and I think she might be addicted to TV now. We are still reading plenty though so we aren't too worried. She still gives every nurse/Dr that walks by a death look. She does not trust any of them since everyone in scrubs tends to poke and stick her. It really is quite funny. She is a pro at giving a scowl!
We will continue to keep everyone updated and again we thank everyone for the prayers, love and support you have shown us. Pray for a miracle!
Praying that God's amazing grace fills you: mind, body, and spirit...praying for peace as you await Monday and any news that it may bring...praying for the doctors and their clarity of thought as they work with Addy...praying for wisdom for all of those involved...and especially asking God for FULL healing of Addison.
ReplyDeleteI wish we could be with you, but know you are NEVER far in our thoughts these days. We love you bunches.