Call Addison a Silly Goose and she will correct you and tell you she is a Silly Monkey! Make sure you get it right! :)
We are now going to the clinic every two weeks. It makes me a little nervous not knowing what her counts are every week but it is better on Addison not facing the needle prick weekly. We went this morning to get Addison's port flushed (our least favorite thing in the world to do). It was pretty terrible for Addy but the nurses were super quick so it didn't last too long. Addison and I made Halloween cupcakes last night to take to the nurses and to use as a comfort tool to get her through the port flush. :) Smart Mommy! Addy LOVES her some cupcakes so when she she was done being tortured she ate a cupcake and the bad moment was over just like that! Oh yea, she also had one for breakfast! :) I am such a softy.
Her counts were good. They didn't drop so that is good.
WBC 4.41 (2.96 last week)
Neutraphil 1.26 (.85)
RBC 10.7 (11.1)
Platelets 25 (23)
We are so hopeful that the rise in the WBC and neutraphil will continue to increase and not go back down anymore. The platelets will start to increase once her WBC gets to a more normal level. 6.0 is the lowest normal for her age for WBC. Her neutraphil (what fights infection) is actually just barely in normal range. 1.2 is normal. They have been here before but then the next week they drop back to 2.9 and .850 so it will be interesting to see where she is in two weeks. At least we don't have to flush the port for another 5 weeks!
Monday, October 25, 2010
Wednesday, October 13, 2010
Weekend in Jax
We had a nice family weekend in Jacksonville celebrating our adorable nephew's 2nd birthday and my handsome husband's 29th birthday! I forgot my good camera so no really great pics of party. Bad Aunt Megan!
The really neat things about the weekend were watching Addison and Caleb interact together. Caleb absolutely adores his cousin and he is so sweet with her. Addison is still in the parallel play stage but it was still cute! The second Caleb noticed Addison was around he would scream (I mean SCREAM) "ADDY!!!!!!" repeatedly till she acknowledged him! So cute. He wanted her to do everything with him.
Addison finally said Grammie this weekend which made Reva very very happy. I am not going to lie, Addison's favorite family member is Daisy at the moment but I think Grammie is a close second! :) She also said Char Char loud enough for us to hear her (she has been whispering it for weeks...very strange) and she of course loves Kick-a-ball...Char Char and Adam's dog.
We went to the Dr Monday and Addison's counts were:
WBC 2.96
Neutraphil .850
Platelets 23
HGB 11.1
Dr was not concerned so I guess I shouldn't be either. I still don't like lower numbers. We are now doing CBCs every two weeks but she will need her port flushed next week. YUCK!
The really neat things about the weekend were watching Addison and Caleb interact together. Caleb absolutely adores his cousin and he is so sweet with her. Addison is still in the parallel play stage but it was still cute! The second Caleb noticed Addison was around he would scream (I mean SCREAM) "ADDY!!!!!!" repeatedly till she acknowledged him! So cute. He wanted her to do everything with him.
Addison finally said Grammie this weekend which made Reva very very happy. I am not going to lie, Addison's favorite family member is Daisy at the moment but I think Grammie is a close second! :) She also said Char Char loud enough for us to hear her (she has been whispering it for weeks...very strange) and she of course loves Kick-a-ball...Char Char and Adam's dog.
We went to the Dr Monday and Addison's counts were:
WBC 2.96
Neutraphil .850
Platelets 23
HGB 11.1
Dr was not concerned so I guess I shouldn't be either. I still don't like lower numbers. We are now doing CBCs every two weeks but she will need her port flushed next week. YUCK!
Wednesday, October 6, 2010
Absence makes the bone marrow grow stronger.....
And our hearts grow fonder!? Addison went to the pediatrician Monday when we got back from our cruise and her weekend at Grandaddy and Mimi's. Her counts were pretty good as Charles posted previously. My parents attribute it to the large amounts of cupcakes Addison ate...who knows! I will get excited about these numbers once I see them remain higher a few weeks in a row. We all know CBCs are a roller coaster from hell.
Again her counts were as follows:
WBC 4.2
neutraphil 1.6 (at lowest range of normal..these fight infections)
HGB 10.5 (been 3+ months these have been stable)
platelets 27 (YUCK!)
The cruise was wonderful! We really enjoyed the "us" time and I think I did pretty well for my first time away from Addison. I did call Mimi everyday to put my mind at ease...can't wait to get this months cell phone bill but totally worth every penny! Besides the Gator's pitiful excuse for a game the cruise was so much fun. We did pretty good in the casino and relaxed by the pool (well I relaxed and Charles went down the slide...over and over and over again!). I came in 2nd place for the Black Jack tournament and Charles made some money on the Craps table.
Since we have not been getting good news recently from doctors about Addison I have to brag about the first good news we have received! So sue me I am a proud parent! Addison's pediatrician said she is more at a 2+year old developmentally since she can say her ABC's, count to 10 and place 2-3 words together to try and form a complete thought! We are so very proud of her. Guess this house arrest thing has paid off on some levels. She went from the 56% percentile in weight to the 90th at 28 pounds (think the cupcakes played a part in this) and from 96% to 93rd% in height at 33.5 inches tall! She is definitely NOT petite!
Again her counts were as follows:
WBC 4.2
neutraphil 1.6 (at lowest range of normal..these fight infections)
HGB 10.5 (been 3+ months these have been stable)
platelets 27 (YUCK!)
The cruise was wonderful! We really enjoyed the "us" time and I think I did pretty well for my first time away from Addison. I did call Mimi everyday to put my mind at ease...can't wait to get this months cell phone bill but totally worth every penny! Besides the Gator's pitiful excuse for a game the cruise was so much fun. We did pretty good in the casino and relaxed by the pool (well I relaxed and Charles went down the slide...over and over and over again!). I came in 2nd place for the Black Jack tournament and Charles made some money on the Craps table.
Since we have not been getting good news recently from doctors about Addison I have to brag about the first good news we have received! So sue me I am a proud parent! Addison's pediatrician said she is more at a 2+year old developmentally since she can say her ABC's, count to 10 and place 2-3 words together to try and form a complete thought! We are so very proud of her. Guess this house arrest thing has paid off on some levels. She went from the 56% percentile in weight to the 90th at 28 pounds (think the cupcakes played a part in this) and from 96% to 93rd% in height at 33.5 inches tall! She is definitely NOT petite!
Addy Bo Baddy Update
Ok since Megan isn't going to share the good news I'll jump on it.
Addison had a good CBC this week. Her hemoglobin is still normal, her WBC went up (from 3.4 to 4.2) and her ANC went WAY up to a normal range (from .6 to 1.6). Her platelets are still low (from 24 to 27) but everything else went up.
I'll let Megan fill you in on the other stuff. Just want to keep the good news coming!
Addison had a good CBC this week. Her hemoglobin is still normal, her WBC went up (from 3.4 to 4.2) and her ANC went WAY up to a normal range (from .6 to 1.6). Her platelets are still low (from 24 to 27) but everything else went up.
I'll let Megan fill you in on the other stuff. Just want to keep the good news coming!
Subscribe to:
Posts (Atom)
