Monday, July 26, 2010

Monday Update-Pics Below!

Addison and I went to Vero Thursday to help mom and dad get ready for Clare's 30th birthday party! Everything turned out great! The party was a huge success and I think my sister really had a fabulous time. My Aunt Cheryl flew in from Colorado and my Aunt Denise and cousin Victoria came over Thursday night to help as well. We had a lot of fun picking on each other while we cleaned and prepared for the party. Addison really took a liking to my cousin Victoria. This is great news because she is officially hired as our travel babysitter whenever she doesn't have school! :)

We took Addison to get a CBC this morning at our pediatrician's office and her counts were OK. Her WBC was the same at 2.4, RBC at 9.4, Platelets at 66 (highest it has been after 7 days), ANC 700 (highest it has been). These are good things but not back to normal limits. I went to meet with our hematologist at 2:30 today. We reviewed the biopsy and went over the 2nd opinion from the pediatrician hematologist specializing in Aplastic Anemia. He did agree it looks like aplastic anemia but he wants to do two more specific genetic tests to confirm aplastic anemia. The biopsy showed production of blood but we do not have a quantitative number. The Dr did say she has moderate aplastic anemia (she was borderline severe before) but her body is showing signs of repair. This could take her months if not years to get completely back to normal. As long as her CBC numbers do not decline we will not have to do treatment. If they start to decline we will repeat a biopsy and start treatment immediately.

We are hoping we can hold off a platelet transfusion to next Tuesday or Wed so that we can take Addison to the keys for a few days! Wohooo! I cannot wait to see how much fun she has playing in the pirate ship pool down there. Dr Said if her nuetraphil count stays above 500 she can swim in the pools down there! Enjoy the slideshow below! Please keep Addison in your prayers. Thank you!

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